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Thursday, 29 July 2010

  • I wish my daughter would sleep


    For two weeks - thirteen days to be exact - we had uninterrupted sleep for at least 8 hours a night.  It was heaven. Glorious. I started to feel human again.

    And Ava was not on any medication.  I was taking her to the pool every day - or letting her go in the baby pool on my deck.  She loves the water.  She adores the water.  She is so calm, so happy, so content when she is in the water.  I even get her to float on her back, as long as she feels me supporting her.

    And on the fourteenth day, she was up from 2am - 6am - as were we.  She slept through the night the next night - and since, has been up during the night.  Last night it was from 2am - 5am. More Here...
  • Why Can't James Talk?




    James' older sister asked a killer question this morning: "Why can't James talk? Why can't he say things the way I can?"
    We've had variations on this subject before, where I've explained that he can talk, and that he's much better than he used to be ... that most people do things in their own time and way.

    This morning, we talked about how sometimes the parts of the brain that control what we want to say and the parts that control the muscles we use to talk sometimes don't work right or can't talk with each other very well. It got me thinking about aphasia and some people having to be trained to relearn to speak. The people who want to use one word, but have another come out instead. More Here...
  • Gary McKinnon should not escape punishment



    Gary McKinnon is the man diagnosed with Asperger's Syndrome who hacked into U.S. military and government networks. It seems many people think his Asperger's should let him avoid punishment. My opinion matches closely with what convicted hacker Adrian Lamo (who also has Asperger's) thinks:  More Here...
  • “TREVOR’S WORLD”




    (Submittals for Chicken Soup For the Soul; Children with Special Needs)

    I have a son named Trevor
    he’s not like you and me
    when he was born he changed our life
    in ways we couldn’t see

    In his crib we hung up mobiles
    he loved to watch them spin
    but his cows never quite “jumped the moon”
    as we sat and wondered when:    More Here...

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