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Help Amelia

Read about Amelia Rivera's story, Kidney Transplant denied. I cannot believe, that in this day and age, that a child is being denied a life-saving kidney transplant due to her cognitive disability ("mental retard…
Awaiting Health Care

Drowning in a tidal wave. Rapidly repeatedly smashing his head hard onto a solid object trying to cause more pain to block out the pain he is already in - giving himself something to cling onto – to find his way…
Learning Our ABAs

Autism-related behaviors manifest differently with each person. Our experience with James is special in that he likes and seeks out others, he is normally sunny, and is empathetic toward others. Sometimes I realize how…
How should we advise our state legislators on Autism Policy?

We are excited to participate in a pilot program sponsored by our local Arc chapter where we will be hosting a small group of parents, self-advocates and local legislators. The purpose of the meeting is to share our ex…
He Said Something!

Apparently C Spoke! After listening to high pitched oooooo’s and eeeee’s for 21 years I didn’t hear C's first words!! ‘Allegedly’ 1 member of staff heard C say... ‘hello’! No…
Clues to How Humans Learn Speech

Researchers at University of Chicago are attempting to better understand how humans learn speech through studying communication in animals. An opinion piece in the journal, Trends in Cognitive Sciences, titled…
Sharron Angle and the Tea Party: Why Autism Advocates Should Fear Them

I wasn’t kidding when I said that it is time to refine the message on insurance reform. It would be nice to have a snappy comeback to this nonsense. ---------------------- How would you respond to S…
A Letter to the Health professionals I've known

The following letter is my second attempt to write to Dr Meyer, my local health professional . I went to see him a couple of days ago. As well as getting my asthma script renewed, I wanted to discuss with him, whether…
Health Care Reform and Autism

Autism Speaks, the nation’s largest autism science and advocacy organization, today pledged to continue the battle to end insurers’ discrimination against individuals with autism at both the state and fede…
Victory for Autism in Health Care Reform

The new health care legislation will have a huge impact on Americans with autism and their families. Insurance companies will no longer be able to deny policies to autistic people when they (or their parents) apply for…