Sunday, 27 May 2012

  • Hold the Wine, I Have to Explain Special Needs


    Wine makes some weepy. Truly. It’s been proven….theorized, hypothesized, tested and proven. On said occasion, I started the evening out happy, without a care in the world. A cork popped at the challenge was presented. The hubs, it would seem, believes himself a vigilant man and informed me of his observations (i.e., theory). Following up, his hypothesis and test was this particular evening. Happy as I began, he believed by the end of the night I would be crying over nothing.

    After two glasses (my official wine weeping limit), I was clearly emotional over something that is unmemorable to this day. Likely it was the unforeseen cancellation of my favorite show by which I concluded that the hubs was most certainly in a lured affair with the cable woman who apparently has enough clout to cancel some meaningless series that has everything to do with nothing. Yep. That weepy.

    The hubs…apparently…was right. 

    Since then, the wine has been put off to the distance. Sure it’s an easy simple tension-tamer at the end of a stressful day / evening / life, but it is in fact full of sugar and my thighs need no help in their spread…not to mention that uncontrollable, nearly psychotic weeping ramblings won’t really help things.

    But after a month of kids being sick, noses, rears, nebulizers, humidifiers and meds, I needed the tension tamed. I popped the cork (okay it was a twist top). One glass poured, two sips later, bedtime is upon us and I find myself answering this question:

    “Why are things so hard for J? What happened? Why is he like that?”

    Yeah.

    Now, my O is a bright girl. I certainly have talked with her about this before, but never with such attention that she gave to the question in this given moment. She was intent in trying to understand whatever answer I gave her. I took a breath and gave her the maturity appropriate answer she was seeking.

    It was a long talk, a good talk. She asked more questions, rephrased my words showing her understanding, asked for clarification, even informed me of what I already knew, “so it was your body’s fault his brain is hurt” (um…yep).

    We continued our talk around compassion and strength. The strength that J has managing life to the highest level despite what’s been thrown on his plate. Managing his life to a level I certainly would not be able to measure up to should the roles be reversed.

    We talked about the compassion I hope others have for him. That I have for him. The compassion that I would hope another would afford me if my brain “got hurt.” I would hope that others would “see me,” treat me as a person and help me with whatever I needed help with while knowing there was much I could not control about myself.

    The threatened to come. Silently. Simple in the tears that gathered within my eyes, finding puddles too large to contain themselves only there…finally making their way down my cheek. This subtle weep was controllable. After all, I’m talking to my daughter who needs not to see her mother cry.

    And yet…and yet she does need to see the powerful emotions behind this discussion. To gain a glimpse of the enormity of the life our family holds, if only to understand to the level that she could. Then she said,

    “I would mom. I would take care of you. I will help you.”

    A few minutes later, as I quietly left her room, I found myself breathing a little lighter knowing that she understands just a little more. My only thoughts:

    I love that girl!

    I’m glad it was just two sips of wine!

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Comments (6)

  • RaisingAspergersKids

    Wine is a depressant. That is why if you are sad it only makes you sadder and it is contra indicated for those on SSRIs. 

  • Shadowrunner81@xanga

    I don't know if O is older or younger, but that is one great sister J has.

  • MyPublicSite@xanga

    Were you tipsy while writing this? Because I could not follow it, whatsoever. And I don't typically have concentration issues. It's about the only issue I don't have. I even tried re reading it. I still don't get it. 

  • Ride_Every_Stride@xanga

    @MyPublicSite@xanga - Yea, I'm with you. At first it was just a little vague & lacking a lot of information but the rest after the picture was where I literally could not read on lol.

  • MyPublicSite@xanga
  • pedsOT

    @RaisingAspergersKids - That's not exactly true. Alcohol is a "depressant" but you are misunderstanding what referring to a substance as a "depressant" means. It is a physiological depressant, not a mood depressant. It doesn't cause depression or cause people to feel depressed, this means it depresses the central nervous system. This means alcohol slows down body functions such as breathing rate, heart rate, reaction time, and motor control. Other substances that are considered depressants are benzodiazapines *generally used for anxiety and insomnia), opiods including all narcotic painkillers, betablockers (generally used to treat cardiac arrhythmia), muscle relaxants, antihistimines for allergies, anticonvulsants for seizures, and a variety of other drugs/substances. It refers only to its affect on the central nervous system, not your mood. Other substances are considered stimulants, which increase alertness and movement and have the opposite affect on one's system from depressants, and include caffeine, ecstasy, cocaine, and ADHD medications. Also, the reason you shouldn't drink alcohol when taking SSRIs has nothing to do with alcohol making people more depressed, it is because there could be dangerous interactions between alcohol and the SSRI drugs. Alcohol is contraindicated while taking almost any medication due to the fact that it can interact and cause dangerous effects. It is true that generally alcohol seems to intensify anything you are feeling before you start drinking it- so if you were feeling happy it causes you to feel REALLY happy, and if you are feeling sad you feel REALLY sad, but being a "depressant" has nothing to do with this. 


    Anyway, just felt the need to correct a common misconception. I think the writer handled the situation with O very well. Hopefully O will be a great advocate for J as she gets older!
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  • GinaStAubin
    • From: GinaStAubin
    • Name: Gina
    • About Me: Mom, wife, blogger, advocate for my son with multiple diagnosis. Autism, Epilepsy, Cerebral Palsy, Sensory Processing Disorder. I blog at www.SpecialHappens.com.
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