Contributors » esteeklar
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C is Celebrating 21 years!
I want to bounce into C’s room singing ‘happy birthday’ giving him a big hug and showering him with kisses and presents. But I know what would happen if I did. And it is not about me. So I walk into C’s room, he spies m… -
Touch wood - a Positive Experience with a New Home
I still can’t quite process the fact that C’s new home is working really well!! Learning from all the negative things the last home did, I talked at length with this new home - they have listened and put everything in… -
Making a Good Mess
At last I have a moving date for C - in 6 weeks. Which is a huge relief. And this time I feel more prepared as I have some idea how C will react. But I also have different concerns this time as C has regressed in so… -
Getting Involved in My Child's Future
Two weeks untill C moves. Sleep alludes me as thoughts run round my head. Visits to C’s new home are going as expected –difficult, traumatic. But each visit getting a little easier, its hard to know how much he understan… -
The Hypothetical Cure Question....
"If I could snap my fingers and become non autistic, I would not - because then I wouldn't be me. Autism is part of who I am." Temple Grandin And that is how I see C. Autism is part of who he is. Therefore I have… -
Being Complacent in Communication
An easy trap to fall in and we all do it. When our children have high levels of support and thrive staff can become complacent (and of course funding issues can play a part) support is reduced and then people wonder… -
Do-Nut
Whilst waiting to move C from his present group home I have been having C home more. In the last couple of years he has been more receptive to going to new places which is fantastic. So in a bid to try and wear him out (… -
Challenging Behaviour
For me what has been the toughest - C’s Autism or his severe learning disability? Neither it’s his challenging behaviour that has shaped both our lives. What struck me very early on in Cs life was the injustice/stigma… -
No holes
I’ve always tried to be positive and creative from dealing with smearing, sleep deprivation to not eating and head banging. These are all forms of communication – I just have to try and work out what C is trying to say.…












