Saturday, 26 May 2012
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Dear Researchers, Please Stop
Dear Researchers,
I am writing to you to ask you to please stop.
Stop trying to find a way to blame mothers. Stop reaching for any and every single thing you can think of to link to a cause of autism.
Stop scaring people. Stop making people think that they have to move, lose weight, have kids early, wait for a second child and any number of other things that you’re scaring people to death with.
Stop making moms think that having a fever will cause autism but taking Tylenol for a fever will cause autism too. Stop making moms think that they have to space out their pregnancies but they also can’t be too old.
Just stop!
I understand you’re just trying to find the truth. I understand that you’re just trying to get more information.
However, this is getting beyond ridiculous.
I have put together this small list of the most recent studies just to give you some small idea of just how out of hand this is becoming.
Ways to blame moms for autism
Closely spaced births:
http://www.ncbi.nlm.nih.gov/pubmed/21220394?dopt=AbstractPremature birth:
http://www.news-medical.net/news/20111018/Premature-infants-more-likely-to-develop-autism.aspxPrenatal “complications”:
http://onlinelibrary.wiley.com/doi/10.1111/j.1469-7610.1990.tb00820.x/abstractNot using prenatal vitamins:
http://medicalxpress.com/news/2011-05-early-prenatal-vitamins-autism.htmlLiving close to a freeway:
http://articles.latimes.com/2010/dec/16/health/la-he-autism-20101217Being overweight:
http://online.wsj.com/article/SB10001424052702304072004577328203742847094.htmlSmoking:
http://www.opposingviews.com/i/health/addiction/autism-linked-moms-who-smokeHaving a fever:
http://www.latimes.com/health/boostershots/la-heb-fevers-pregnancy-autism-20120523,0,6934232.storyBeing pregnant linked to autism
At this point, can we all just agree that being pregnant is a link to autism? Giving birth is a link to autism. Being alive is a link to autism.
No, they’re not the causes but they are linked! Breathing is linked to autism. Opening your eyes is linked to autism. A heart beat is linked to autism.
The refrigerator mom theory is dead and in the past. Can you please just leave it in the past?
Enough is enough.
Stop pointing fingers.
Now you know that being born is a link to autism, you can start putting your time, energy and money into doing something that is actually helpful.
You’re welcome.
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Comments (31)
Thank you for posting this.
I'm on a forum with many other autistcs, and someone mentioned that with autism, the normal rules of scientific rigor don't seem to apply. Everybody is so determined to believe that the "mystery of autism" lives up to the hype that there simply is no autism awareness, and the autism awareness campaigns are mostly making this worse. I saw a billboard the other day with the word autism, and a statistic. This is what counts as awareness?
I totally agree with your post. I have a 7yo who has been diagnosed and another son 8 weeks. The stress I had throughout my pregnancy and still feel due to the blaming game is not productive to anyone. I am trying to enjoy my 8 week son but it's hard not to look at every move he makes and question myself as a mother.
I don't know how my 7yo ended up the way he is but regardless I would never swap him for any other child. I love him quirks and all. I think every parent asks this same question but in reality funding is better spent in finding ways to help our children live a better life.
Uh, if you can't find what causes it, then how can you solve it?
@phantomFive@xanga - Maybe it's not something that can be solved. Autism is something that happens, whether we like it or not. I'd rather see these research efforts go toward something that will make life easier for these children, not drive the parents insane and scare them half to death.
@phantomFive@xanga - There may not be anything to "solve." Autism isn't a disease, it's a state of being, different but not less than your state of being. Some of the world's greatest geniuses were/are on the ASD spectrum.
@the_rocking_of_socks@xanga - @joyouswind@xanga - Chances are it can be solved.
@phantomFive@xanga - Are you a doctor? Do you know more about it than anyone else? No? That's what I thought.
@the_rocking_of_socks@xanga - The doctors are the ones out there doing the studies, because they think it can be cured (or prevented). If they didn't think so, they wouldn't be doing the studies.
Please don't be illogical.
please keep researching, dear researchers and ignore this ignorant posts.
DON'T EVER GET ANGRY AT RESEARCHERS.
get upset with poor science reporting, the superstitiously undereducated public, unethical pseudoscientists and fallen members of the Baconian tradition.... but never hate on people who dedicate their lives to the pursuit of pure knowledge.
YOU are what's responsible for the gap between science and the layman, why after we take off our labcoats and walk into a pub we can't talk about our work, why we have to quietly wince and grimace everytime the yellow press twists a minor quirk in numbers into something outrageous.
Just go home and live a good life, but don't EVER meddle with scientists again.
ps-please donate your body to science, it's as close as you'll probably ever get to breaking even.
Thank you for this post....truth is, they have no idea what causes it, and only try to find links because of some things that these kids, or their moms' pregnancies, had in common. Everyone has many things in common with others. I could look back at things that "happened" with my son, my pregnancy, 26 years ago and say "Oh, that must be why the way he is the way he is!" just because some new article or research happens to point to that. The truth is, I didn't do anything to cause anything during my pregnancy...only did what I was supposed to do to have a healthy baby, everything the doctors told me to do, the same as I did with my other two children. One is on the ASD spectrum, the other two are not. Go figure. I think it just happens, and while they think there may be certain links, I tend to think that all kids are just different from birth - you can do all the same things during pregnancy and birth, raise the kids in the same house, same environment, same parents, same foods, whatever...and that is no guarantee that the kids will be anything alike, or that one will be troubled by one health problem or learning problem or another. I do think that my first son's extremely long labor and difficult birth were the cause of some of his learning problems, but probably not all, and maybe not the ASD - all my kids were huge and none were c-sections, and the other two are fine. So yeah, I totally get what you're saying...and I don't think they'll ever find one thing that points to ASD that loving, caring mothers who are taking care of themselves and their babies during pregnancy and after birth can do any differently than they already are.
@the_rocking_of_socks@xanga - No, they actually do know more than you and me. Remember how we talked about not being illogical? Please don't forget that.
At this point, I kind of lost my ability to give a rat's ass about what causes autism. I just have to live with it. I agree that while the researchers are doing all they can, some theories just come out as ridiculous (my personal favorite being PETA's dumbasses saying milk causes autism.). But I wouldn't tell them to stop researching. Just to cut the crap. Be rational about it. I don't live near a highway, I was born at the right time, still got autism. Being over weight and drinking milk? That did nothing to the regular ones.
@Dungeonbrownies@xanga - This is not about the pursuit of pure knowledge. This is about injecting false mystery into an old question. There is a huge amount of money going to "finding the cause of autism," which has already been shown to be mostly genetic. In the meantime, that money is not going to support, or integration, or education. None of this garbage about "maybe it isn't genetic afterall" does anything to help real people who have to live with autism.
The world would be way better with less "anti-science" people around, you have to thank science for not having to be afraid of our kids having poliomyelitis and, perhaps, one day we won't have to be "afraid" of autism. Even if they find out that autism can't be cured, they will surely make us understand it more, and come out with totally new approaches on the education of autistic children.
Damn, we are almost having to thank them for making spinal damage healable. Alzheimer is far more understood than it was half a century ago.
If you have to blame anyone, blame the news media and all the scientifically unprepared people who choose how they will pass what scientists publish to the common public.
o sure, it would be much easier to say it is the work of god.
Those doctors don't know shit. All they're doing is making guesses, and guessing poorly, at that.
Scientific method, if you don't know what it is, don't criticize it or use the old "they know shit" fallacy. Astrologists guess, homeopathists guess, "it's god's will" people guess, the work of science is to investigate and verify phenomena.
It was no "casual Joe" who found out what autism was, it were Kanner and Asperger, medical RESEARCHERS and SCIENTISTS. If not for them, we wouldn't even start to know that these people can have an independent and productive life.
You people HAVE to think about it before saying that professionals "don't know shit" or that they should "please stop" researching.
Ugh, seriously? Researchers are just trying to do their job and learn more about this disorder. They're doing the heavy mental lifting for everyone. As someone said before, it's the media that gets mothers and everyone else worked up into a frenzy of paranoia. It is the media's job to stir things up. It is up to researchers to get to their lab benches and figure out how things work. Leave the researchers alone. They're doing the best they can.
Go figure. I think it just happens, and while they think there may be certain links, I tend to think that all kids are just different from birth - you can do all the same things during pregnancy and birth, raise the kids in the same house, same environment, same parents, same foods, whatever...and that is no guarantee that the kids will be anything alike, or that one will be troubled by one health problem or learning problem or another.
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Please, enough with the knee-jerk reactions.
The researchers being mentioned in the OP are looking into fringe science with little to no supporting evidence. This post is NOT anti-science. If you knew more about the scientific research that has been done--to gather knowledge, and not headlines--you might not agree with it, but it would be easier to understand.
As the OP mentions, causes are being investigated that have already been disproven by means of scientific enquiry.
I LOVE this!
Please no more nonsense research. We do not have the $ to waste!For heaven's sake the big take aways from this silly science is: don't smoke, don't be a super old parent, if u are a fat mom autism is your fault- oh- getting sick when u are pregnant turns out NOT to be a good idea.Wow I am so glad we spent tens of millions for these pearls of wisdom. Now can these research orgs get off their asses and do some real work for a change?
"If you have to blame anyone, blame the news
media and all the scientifically unprepared people who choose how they
will pass what scientists publish to the common public."
Very well said.