My sweet boy, Kingston. I remember 4 years ago searching the internet and putting into the search engine all the "weird" things Allbri was doing and displaying. I will always remember the day I saw the word "AUTISM." Even though it scared the crap out of me, something clicked
, and I knew in my heart this is what we were dealing with. And with that, our family started its Autism journey.
I never had that "click"again......until now.
When Kingston was 12 months old, I remember he would have these whole body tremors, tics, whatever you want to call them. We thought he was excited for opening his birthday presents. Then, we thought, he was excited to open Christmas presents....and so on.
I noticed he couldn't control these tics and he started to scare me when he was doing them. Our first visit to the pediatrician....we were told he was having seizures. Now, I'm not doctor (although, I think I have researched my ass off like one!) but I do know that anyone who has that many seizures in one day (he was having up to 10 tics a day) will have some type of neurological repercussions. And he didn't.
Then another pediatrician suggested Tourette's....and although he did display the tic, that "click" didn't happen for me and it had to after what we went through with Allbri.
I wasn't going to let Kington go through any unnecessary testing that I didn't see fit, not this time. " I "was in charge of my children, not the doctors!
Cut to this past December, once again, I told his pediatrician something isn't right....we need to pursue further. So we went to a Pediatric Neurologist. After a hour in a half visit, I was told he had PDD-NOS. I thought to myself.......maybe.
I remember leaving there thinking "NOW WHAT?????"
Wait.....wait and see....for what? Come back in a year and we will go from there she said.
Once again, the click didn't happen for me.
So, we put Kingston in a daycare setting to let him get out of all this autism stuff with Allbri and be around other children. He progressed so fast and loved preschool, that I asked for him to be bumped up to the older kid room. (All the kids were his age, and in the daycare room, he was the oldest) When I saw the difference in him socially, I was floored! Why hadn't I noticed he was "socially awkward?"
Kingston is too smart for these kids...he has known all his numbers, letters, he is starting to read books on his own. He would rather read about dinosaurs than play with toys.....but, he doesn't know "how" to play appropriately. I sucked up all I had and made a call to Allbri's former special needs preschool teacher.
I knew I had too.
After talking with her, she asked about Aspergers. Aspergers???? Why didn't this ever cross my mind? I will tell you why. Our family only was able to see Autism....Allbri's Autism. Classic Autism. Nothing more, nothing less.
I read about and researched Aspergers.................AND IT CLICKED!
I knew this is what Kingston was dealing with....."MY SON HAS ASPERGERS!!"
After a quick talk with our pediatrician (Yes, it was quick, because for the most part, he knows I mean business when he comes to my children!) he confirmed what I already knew.
And now, the journey is beginning for my little man, Kingston.
I always blogged that Allbri chose us as her parents. I have felt that from the beginning. I wouldn't have known what I was doing 21 years ago when my first daughter was born. I didn't have the knowledge or the resources to advocate. Now, I do. And I will.