Friday, 13 April 2012

  • Sleep Difficulties and Autism Spectrum Disorders


    A Guide for Parents and Professionals by Kenneth J Aitken

     This is a weighty tome as well it should be considering the subject matter, which deserves every word.  

    Anyone who has any experience of sleep difficulties knows the detrimental effects that can wreck havoc in a household.  Anecdotally, I know several families with one autistic child, or rather, only one child, who sleeps together with his parents in the same marital bed.  When I say ‘sleep’ it would be more accurate to say ‘cat nap;’ each individual snatches intermittent minutes or hours, none necessarily at the same time.  This observation of mine is born out by the statistics in Aitken’s book and should serve as reassurance for parents.  We are not alone. 

    The spectrum of difficulties are explained in detail as well as a broad selection of possible solutions.  Desperate parents are likely to claim, like me, that we’ve tried all that before, but it is useful to remember that what didn’t work when they were 3 or 5 or 10, might be worth another try now that they are teenagers.  For instance, I plan to show my sons the highlighted section about ‘aerobic fitness,’ although I’ll hide the bit about ‘surgical removal,’ on the next paragraph.

    I agree whole-heartedly with the first step of making a ‘sleep diary,’ only then will you be able to get a bird’s eye view of the true situation.  When we started doing this many years ago, a pattern emerged: three or four months of blissful sleep, following by up to a week of being awake, then gradually tailing off until we were all thoroughly exhausted and a ‘normal’ sleep pattern re-established itself again.  Over the last decade the periods of normal sleep lengthened, and the nocturnal times shortened, but without the diary [ies]  I would have been none the wiser.  Now, if I could just get them to be nocturnal at the same time, that would be a real breakthrough.

    Overall, this book has a great layout, easy to follow with the data to back up the assertions and some delightful quotes to lighten the load  e.g. ‘It is a bad plan that admits of no modification.’

    Available from JKP and Amazon.

     

Comments (4)

  • autisticsenior

    Rx for sleep = (Mirtazapine (Remeron) 15 mg) + (Melatonin 3 mg) + ((Omega3 Fatty Acid Gel tabs 1000 I.U.) x 2)


    The above formula is what I use to get a peaceful 7 to 8 hours of sleep every night. I've been using Mirtazapine (generic for Remeron) for the past 10 years.
    What struck me from the post was the discovery by the author that some parents allow their autistic child to sleep with them in order for the child to get some sleep. My mother discovered that technique for sleep success in the 1950's. Consequently I was 6 years old before I had my own bed, only after throwing tantrums (meltdowns) and demanding my independence. With independence came night after night of insomnia.
    Whether or not medical professionals agree with that solution, I have no idea. And whether or not there are negative psychological ramifications, again, I have no idea. But it worked.
    As a married adult (now divorced), I always got a good night's sleep next to my wife. I assume the same principal as a child worked in that scenario.
    Fortunately the Rx cocktail described above is working for this 60 year old male with Asperger's Syndrome, soon to be just labeled with Autism Spectrum Disorder (ASD) circa May 2013.
  • bluejacky@xanga

    Diagnosed Aspeger's late, GAF 51-60, documented severe sleep disorder all my life.  Sleep clinic chased me home after only 20 minutes of sleep for hours.  Spent 10 years on amitriptyline, only made it worse (triggered severe SVT during sleep, doctors didn't catch that and thought I was having panic attacks- in a dead sleep???), another several years on xanax, hellish nightmares made it monumentally worse, I will never do benzodiazapines again.  Nothing alt helped at all, melatonin and valerian tea were a joke, went through several jars.  Most nights I'm thrilled with 2 hours of sleep at a time and 4 hours total per night, if I get 6 total I'm ecstatic.  I have kept sleep journals, do all the 'good sleep hygeine', etc, but there is nothing on this planet that stops the alpha/delta brain waves crashing together, which means I don't go through transition between asleep and awake when it happens (which is nearly every night), I am just suddenly very awake out of a dead sleep.  My goal is good REM, and I'm super awesome at relaxation techniques, meditating into a trance in bed and skating like a feather on the edge of actual sleep, which really does help alleviate all the irritable nerve feelings you get when you haven't slept well.  On very rare occasions I sleep too hard and wake up nearly immobile, all my muscles locked, and get up to a throbbing headache the rest of the day, so frankly, I'd rather wake up a lot.

    I would love to see real sleep studies done on the autism spectrum.  Sometimes there is more to good sleep than simply retraining the brain either chemically (meds and alt) or via biorhythms.  As far as I can tell, I revert constantly to a particular time zone on the other side of the world and have to 'reset' back to my own time zone over a course of a couple of weeks, get a good night or two, then bing, back to the old time zone.  I've tried being a night owl and sleeping during the day, impossible.  I spent nearly 20 years sleeping an average of 4 hours a night (some years better, some worse), and the only thing I can find that works is waiting it out, being patient, stay on track with my usual day hours, spend quality time relaxing, and deal straight out with whatever bothers me in my head so I don't have that running in the background.

    I used to sleep walk as a child/teen.  One night I dreamed I was a vampire and dramatically tiptoed my way to my mom's bed and loomed over her, getting ready to bite her neck.  Boy, was she surprised...  I remember the dream because her surprised reaction woke me up in the middle of it.  I think that was the worst it got, but I do remember being so bored at night that I'd take the screen off my bedroom window and go climb a tree so I could watch the cars and street lights.

  • bluejacky@xanga

    @autisticsenior - I would love to be able to sleep next to my husband.  I am so sensitive to his body heat that we can't snuggle at all, and any accidental abrupt touching has me erupting out of sleep like a cat hitting the ceiling.  We've slept apart for years.  Which actually works if you plan out 'dates'.  18 years so far.  I never did well sleeping next to parents, I'm way too claustraphobic.  I dealt with night terrors the old fashioned way, screaming.  They got a lot of exercise the first 5 years.  Mom blamed me for her gray hair.

  • bluejacky@xanga

    One more thought.  I grew up on a farm and am currently raising a new batch of chicks.  I can't help noticing through my life that my brain works more like an animal's, I'm capable of responding to immediate action if it's necessary.  Animals react to 'kill or be killed' right out of a dead sleep, they can go into deep sleep and jump up wide awake, and I think my brain is like that.  If human society allowed us to lay down and sleep any time we want, like animals do, I think I'd have slept a lot more.  But between holding jobs and getting kids to school and sports and everything, my sleep time (and all of our sleep time, really) got squished into a tiny little slot.  I cannot sleep on command.  I've never been able to just lay down and fall asleep.  My husband does that with ease.  Yes, I'm jealous.  BUT.  He can sleep through carbon monoxide and smoke alarms.  He can sleep through a tornado ripping by within a mile of the house.  He can sleep through cats mating or fighting on the deck.  He can sleep through a kid crying.  I figure every house needs someone who wakes up a lot... or at least wakes up easily.

  • Sign in to Comment

  • Give eProps (?)

About the Author

  • whittereronautism
    • From: whittereronautism
    • About Me: Ex-pat from the UK. Middle aged, bifocaled and technically challenged. My Significant Other and I currently enjoy fragile custody of 3 minors and a major, two girls, two boys, two with blue eyes, two with brown eyes, two with autism, two without.
    Stats: This Week All Time
    Posts: 0 49
    Views: 0 21802
    Comments: 0 52
    View all posts by whittereronautism

Who recommended?

Who gave the eProps?

2 eProps from: