Monday, 26 March 2012
I know my child makes you nervous.
It’s okay. Really. I still love you.
Knowing you to be the good and kind person of whom I am fond, I know the lack of interaction with him isn’t deliberate. You are simply afraid, not of him but of doing something to upset him. I have had this same fear in being around other people’s special needs kids in the past, so I get it. I do. But it makes me sad that you may be holding out and miss getting to know my sweet, precious little boy. Because he is truly worth knowing.
One of the great wisdom statements about special needs children is that it is important to remember that they are first –children, followed by their special needs. But I know that many folks, you included, see my child and see his special needs first. And, I can’t blame you. He is certainly different.
But, really, he is just a little boy, three years old. And, though he is autistic and differs from typical children, it doesn’t change the part of him that is, first and foremost, a child. Those of us who have, love, or work with special needs children get this. But as my child has grown and his needs have become more evident, I have noticed well-intentioned family, friends, and acquaintances such as yourself struggle with how to interact with my son.
When my friends meet him – and aren’t sure how to engage him – it usually goes something like this:
“Will he get upset if I…?”
“Is he doing this because…”
“But he is so _______! Are you sure he’s autistic?”
I know you aren’t avoiding him because you find him repugnant. You are simply hesitant. You don’t know where to begin. And you may feel guilty about it. You may feel that stress come over you when you see him – wanting to interact with him like you would any other child, but fearful of saying or doing the wrong thing. It probably doesn’t help that you once saw “Rainman”. So, you ask questions but hold back, unsure of what to do. I know you want a clear picture of him – a kind of map to guide you in interacting with him. And that’s where I can’t completely help you. Because getting a clear snapshot of a child with special needs is a very difficult thing. Hence all the specialists.
I have used my three lenses analogy before, as it seems to make the most sense to me. Often, I try to figure out what is going on with my son and find myself asking, “Which is at play here? Autism? Typical Toddler? Or just Callum?” I drove myself crazy doing that, trying to break him down into parts in my quest to figure out how to best help him. And finally it hit me that I cannot analyze him in terms of one or another. For he is all three. He is at once a 3-year-old, an autistic child, and himself – Callum.
It’s like trying to take a picture with an SLR camera. Normally, you can simply point and shoot and get a pretty good picture. But, if you are in dim lighting, or there is a great deal of movement or distance, you have to use special settings and special lenses to filter and enhance the image.
Trying to figure out what motivates a special needs child can be complex. For you need three (or more) lenses. You need the original camera lens itself to take a simple standard picture. Then you need a second lens that filters for special needs – autism, Down Syndrome, etc. You might need, depending on how many special needs conditions the child has, several such lenses. Finally, you need a lens that enhances that child as an individual. Because, like everyone else, special needs kids have their own temperaments, interests, fears, etc. So, to get an accurate picture of a child with special needs, you have to take a picture with all three lenses at the same time. For if you remove one of the lenses, the picture does not reflect the true child.
The problem is that some of the lenses we need still haven’t been invented.
So what do I say to my friends who honestly want to get to know my son but are hesitant about doing so? It’s really simple. Just ask me about him. I’m all too happy to help you connect with him. I’ll tell you all about him. Feel free to ask me what he likes. How you might best make a favorable impression. What might upset him. And, then, just go for it. Visit wearing comfortable clothes and get down on his level. Take an interest in what he is doing and attempt to join him. He’ll notice you. Pretty soon he will likely begin interacting with you to some degree. And, if you let him warm up to you, you might even get to roughhouse with him and get in some tickling and giggling. He’ll love you, I promise. And, if you are unwittingly doing something that might not be the best way of engaging him, I’ll be there to suggest another. Soon, he may climb up on your lap. He will recognize you in the future and maybe smile when you walk in the door. You will have made a special little buddy who will melt your heart.
And then you will have a clear picture of my child. A child like every other –yet not. A child who loves, laughs, plays, snuggles, fears, delights, and enjoys cookies as much as any other. He may do all those things differently. But he does do them. And knowing him and forging a relationship with him will change both you and him for the better. For not only is he worth you knowing, I happen to think you are worth him knowing. :)