Wednesday, 19 October 2011
The unwritten oath of a mother is to protect her child and after thirty-nine years, I still cannot do that in the seizure department. That is a hard pill for me to swallow. As I write this, I am searching for a new neurologist.
Did you know that 25% of children who have autism also have epilepsy, and 25% of people who have epilepsy are unable to control their seizures with medication?
My son, Brandon has had seizures since he was nine years old. Today, he is thirty-eight and he still continues to experience them. He has been on numerous medications and we are running out of options. Two months ago, he was put on a fairly new medication for adults who have generalized epilepsy. His neurologist said he has had great results with this newer drug called “Vimpat.” Unfortunately, Brandon is still experiencing seizures and having more than usual. Brandon feels both disappointed and depressed.
The other day he called to tell me he had another seizure and was taken to the hospital again for the third time in a week. He said, “I hate my life, I hate my life, why me?” After almost thirty years of trying to stop his seizures I could understand how he felt. Thank God the next day he woke up feeling better and was ready to start anew. He never carries his old baggage from one day into the next.
He continues to be my finest teacher.