Tuesday, 17 May 2011

  • A New Journey

     

    I’m feeling blessed to have a place to talk about the journey my family is on with my son.  He has an Autism Spectrum Disorder (PDD-NOS).  He was diagnosed less than 2 weeks ago.  He is 4 and his name is JJ.  He has an older sister that is 9 and an older brother that is 7.  His new diagnosis helps me understand his constant repeating and need for acknowledgment; why he has difficulty expressing himself verbally; how he sits at a potluck picnic with 50 other people and flaps his arms the entire time from being overly stimulated; and how he has a constant need for routine.  A wrong turn in the vehicle can set him into a fit of rage.  Today, I am wondering if I am overreacting regarding his diagnosis.  I hadn’t spoke to his teacher since the end of summer, and with a new school year upon us, I had to tell her what was going on with him.  After I told her, she smiled and carried on that he is fine and that she wouldn’t worry about the diagnosis being on his IEP.  I was a bit surprised.  The end of last school year left us wondering what the future held as she voiced, “He just wasn’t making the progress he should be”.  I was thinking having PDD-NOS listed on his IEP would only help him-as right now Developmental Delay has been his diagnosis since he was 3.  We aren’t looking to label him.   As his mother, I need to be his advocate.  Am I hurting him or helping him by having PDD-NOS on his IEP?  I only thought I would be helping him.  And the journey continues….


Comments (1)

  • Drayvensdaddy

    When our children are having developmental issues, it is our responsibilty to seek out and ascertain those methods that would be most beneficial for them as they continue to learn.  In this father's opinion, you are using your noggin' EXACTLY as a caring and attentive parent should.


    It is my belief that, if an IEP is going to be effective for our children, then everyone involved in this routine should have an understanding of, and be privvy to, the tools that can/will be adopted (see adapted into the childs curriculum.  I think that, if you feel you have needs regarding your childs development, and you can see that some of  those needs could be met by using tools that are already in place (i.e. Individualised Education Programs), then it would be wrong to limit the potential of those tools in lieu of waiting for other tools to become available, or other parties to become involved.


    On a more personal note:  When my own son was diagnosed within the autism spectrum, it was overwhelming.  Luckily I was able to find it within myself, to simply acknowledge that he had a problem, and to continue to watch him, and interact with him as I always had.  I also read every bit of media that I could get my hands on, so that I had tools at my disposal if I ever encountered a situation that I could not affect properly.  In this manner, I learned that my son was still the same child I had known for his whole little life.  And that the only thing that had TRULY changed was my own perspective.  Thereafter, it was my goal to remember NOT to limit him by what I had learned.


    I should mention that it was also at this point that I found that my best advise to his mother was to remember one very simple truth...a, "Diagnosis" does NOT change your child.  The child is the same child as they were before their diagnosis.  We were able to interact with them (him), and the (my) child were (was) able to interact (with us).  There was and is still, a relationship that is unique to you (us) and your (our) child.  The only thing that we can be certain of, is that the way others interact with the child will change.  It is our job as their parents, to be highly proactive in their educational development, and especially in the case of children with learning hinderances,  their personal and social development as well.  In all instances of course, but specifically in surroundings that are not entirely within our parental control.


    **I hope that this comment finds you and your son doing great.  You sound like a very attentive parent.  Just try to remember what other parents have been saying for eons..."Parenting doesn't come with a handbook."  Not even to parents of children with learning impairments.

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  • autismlearningfelt
    • From: autismlearningfelt
    • About Me: I am a WAHM, with two children. My daughter is 5 and my son is 10. My 10 year old son is diagnosed with Autism. I have a home-based business, www.learningfelt.com . Great creative and fun activities with felt for children. This blog is for sharing my experiences raising my son, product reviews, giveaways and sharing whatever items I find and want to share with all my readers. Read more at my blog: http://www.autismlearningfelt.com/
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