Saturday, 14 May 2011

  • Too Much of A Good Thing

     

    Too Much of A Good Thing Is Never Good...

    Even if it is therapy to help my kids.  Andy’s therapy hours are ramping up quickly.  He is doing awesome.    This is great but our days are long.

    The boys are getting funding from the state of WI to cover 20-35 hours a week of ABA based therapy. This intensive phase lasts 3 years.  In order to stay in the program, they must get a minimum of 20 hours a week; otherwise they are dropped and can’t return.  Illness, emergency, , or an occasional vacation is OK.   This can’t be done half heartedly.  It’s all or nothing. 

    Andy’s therapists come from 12-3 pm, and then Eric’s come in from 3:30 to 6:30, with an overlap of both boys on Saturday.   Eric has one session every Sunday, and every other Sunday another therapist comes later in the afternoon for 3 hours, so from 10-4:30 he has therapy.  In order for him to get his required hours since he’s in school full day, the Sunday is a must.  I understand most kids have homework, and parents don’t get time off.  Most adults would not go for having to work 7 days a week, and still have to work when you get home.  I have to ask this from a 7 year old!  Andy’s school is half days 4 days a week.  Kids need time to play and rest.  This strain has really shown in their behavior.  They are very moody and irritable; the aggressive behavior has reared its ugly head.  Their sleep has been very poor; 2-3 hour a night.  These boys having such a hard time along with lack of sleep, very little adult contact, time out of the house, and physical health issues sent my emotions and mental health downhill.  Eric’s bus broke down and he came home late Friday. This bus thing, then the therapist here right when he got home had him very upset. The tantrums were very violent and did me in.  Something had to be done so…

    I canceled all therapy last weekend.  The boys and I just relaxed, let go of stress as much as reasonably possible.  My boys are much happier with no major tantrums.  Their sleep is back to reasonable levels.  I'm finally starting to feel better.  I’m ready for all the evals, meetings, and appointments for the kids coming next month. They are happier and relaxed because I am.  It’s time to return to reality. There will be more long days being cooped up to face the next months.  During the summer there’s no therapy on weekends.  We will get through, one day at a time.  We will take what we have given to us.  No matter if it's a bit cold out or it isn't much time we will get outside some.  At times I felt selfish and overwhelmed and wanted this all to stop.  We need to care for ourselves to care for our kids.  We all need breaks.  It is OK, and necessary to do this when needed.   

Comments (1)

  • MegaMomNTWarrior

    Keep hanging in there, you're doing great! I think you did the smartest thing in taking a mini break & just breathing. We're in a similar situation - nowhere near what you're going through and I can only sit in awe at how you're managing it! We're not in ASD therapy but for my husband's lymphadema. It's 2 hours travel time and 1 hour therapy 5 days a week plus extra MLD (manual lymph drainage) and bandaging when we're home. (altogether another 1 1/2 hours) And did I mention hubs is an Aspie with severe anxiety when routine isn't kept? So going out of our normal daily routine has been hard on him. He just wants to crash once he gets home, which is perfectly understandable. Trying to keep things as normal as possible for our kids (one an Aspie as well) feels like it's stretching me.

    Thank you so much for sharing your struggle and bravery, keeping it in mind will help me keep my perspective and hopefully keep a positive attitude for these months in therapy. Sending you big hugs and good vibes. Your boys are lucky to have such a dedicated mom!

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