Thursday, 05 May 2011
They call him “Bones”. This boy of mine. A name I didn’t really foresee, being that one of my many frivolous concerns was the shortening of his name turning to his nickname, which I didn’t want. But then again, I haven’t foreseen much of what’s happened in our lives over the last 8 years. So, Bones it is.
And this name, I don’t mind. This nickname is meant to be fun, reflective of the care his teachers have for him (after all they are the ones who came up with it). But it does bring to full focus one of the many significant concerns we have for J. He’s too skinny. Genetics does play a part; I was very thin, string bean and bean pole being my nicknames for a short time….but he’s even skinnier than that.
We’ve changed his diet, we’ve been radical about it really. It worked…initially, but it’s declined. Of the foods he *can* eat, there’s very, very few that he *wants* to eat...that he’s willing to eat. He’s withering away. Getting scary skinny. Almost emaciated. Lethargic.
We’re making all the moves we can think of. Our GI is concerned about full blown Celiacs disease so a scope is being worked out. Blood work. Nutrition again but through a different venue. Immunology. All the avenues we can think of. We’re working hard at getting him to branch out to foods he used to enjoy and he can have, but hasn’t had any interest in.
For all of this, C and I find our thoughts muddled. We’re crossed with the idea that we keep foods from him that are “allergens” to help his body retain nutrients. To be healthy. To keep the elusive weight on his body. Yet, it’s not doing that...the diet...leaving us trying to deny the pit at the bottom of our stomachs telling us our son is starving.
So, for now, we’re just basking in the warmth of a nickname born of the tenderness of his 2nd family, his teachers…for now, Bones it is.