The awkward moment..........
..........when HRHs' consultant says 'he doesn't have Langerhans Cell Histiocytosis, the test came back negative' after a whole week believing that he had, when they told
us this is what he had! I can't be cross though, they did say it was preliminary and we took it with a sigh of relief because knowing was so much better then not knowing. Still, they were confident.
A week of researching, planning for chemotherapy and just getting our heads around the enormity of what he would be going through. The thing is that I can't let this knowledge and information go yet because they do think he has something along those lines but..........
They don't know what he has, not a clue! His medical case went up before the Tumour Board (comforting name, eh??!!) yesterday and they had no further suggestions. It has also been forwarded to a team of experts in the USA and put up on a global medical website to get opinions and still no suggestions..........yet. All they know at the moment is that he has abnormal cells in his bones and they will keep going until they find out exactly what is happening to my little sweetheart. There have even discussed sending us to another hospital abroad, but not yet.
Thanks to everyone for the lovely comments, emails and support over the last few weeks. It is lovely and I look forward to opening my emails each day knowing that lovely, kind emails will be waiting.
Back to not knowing but onwards and upwards, right?