Saturday, 19 February 2011
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I Wish I Was Never Diagnosed With Aspergers
I wanted to share this post on a public forum to see if anyone felt the same way with their conditions and experience the same trouble.
When I was really young and growing up, getting through grade school and whatnot, my mother had me take days off from school just to see certain specialists. I think this all began when I acted up all the time in Kindergarten. My overly obsessive and overbearing mother wanted to see what was wrong with me. At the time, I just took it all at face value; I didn't care or wonder why I was going to these meetings and saw it just as an opportunity to get out of school, where I didn't want to be because I'd rather be at home playing video games or watching Nickelodeon. Tying into that, I think my mother also found it strange that heaven-forbid I wasn't into playing sports back then, even though they tried to get me into sports I hate playing to this day (i.e. soccer).
I was diagnosed with aspergers in 4th grade, but things started hitting me hard as soon as I got into middle school as I realized how socially-avert I was. From there, things just got worse. The knowledge that I have aspergers and knowing what it is has really taken a toll on my life. It didn't help that my mother had to etch in my brain that I have it and continued to make me go to counseling sessions in high school.
The reason why I wish I was never diagnosed is that I can never see myself as a normal, functioning person. I am always feeling negatively about my life because of it to the point where I would even list things I would rather have than aspergers, such as colon cancer, AIDS, typhoid fever, etc. At least life wouldn't be playing a joke on me then. I feel as if I am cursed and plagued by this "disease" to the point that it has given me suicidal thoughts. I mean, how can you live life when you can't enjoy what most others can enjoy because you're "disabled"? Like I can go through college and pass whatever tests they give me and get degrees and whatnot, but I can't land good jobs because I don't have ideal personal and communication skills. Likewise, I can never land a relationship, let alone a good one with a girl I like. But is it because I truly have bad communication and social skills, or is it the negativity that's etched in my brain telling me that because I have aspergers, I'm going to lose before I even try and shouldn't even bother? That's the first thing that comes to mind whenever I'm in a group setting or am trying to prepare for a job interview or career fair or even preparing to impress some girl: I have aspergers and thus I have a high risk of failure because I am by instinct socially inept, even though I don't have that serious of a case of it. It's like having a developed mindset that you could never curb your alcoholism or your eating disorders because you believe those things are a disease you have no control over. As a result, I keep making excuses for myself based mainly on the aspergers as to why I should be risk-avert, and I have developed this great negative attitude about myself, even though I know it's wrong to do that and that it's "all in my head".
I would like to write more on this, but I will leave it open to discussion.
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Comments (72)
My ex boyfriend has Asperger's. I loved him more than anything. He has also been able to make a lot of friends, join clubs at college, and go to a lot of shows. He doesn't let his diagnosis stop him from doing what he wants with his life, and I'm really proud of him for it.
So don't lose hope. You are not alone and you are not cursed. Some things will be more difficult to figure out, but it is possible to find the right loving and supporting people in your life that will stick by you no matter what happens.
@raspberryjade@xanga - "why won't you get a good job? you don't need to list the fact that you have aspergers on your resume.
I think a lot of it has to do with your negative thoughts."
I wish I'd had people saying stuff like this to me when I needed it most. The problem with jobs are that many of them create stab-in-the-back dog-eat-dog kinds of relationships, very competitive. And people who don't automatically fit in well and recognize the social dance don't usually get a lot of moral support. I loved all my jobs but felt driven out by bosses and sometimes coworkers because I couldn't conversationally 'play ball' or correctly play the submissive role or whatever.
I think kindness like yours from more and more people will solve the asperger's crisis faster than anything. The hardest thing to face sometimes is knowing you are 'defective' and still pretending to pull off a decent normal before someone has fun dissing on you.
And no offence to anyone, but it's ~really~ hard sometimes to forget you don't have a blaring social deficit that mangles your day when it happens over and over. Takes time, and lots of patience and forgiveness from others. Bless everyone who lets us roll off.
@Coffee_Kaioken@xanga - EXACTLY. it's all relative. EVERYBODY is at least a little bit on the spectrum. And there's no reason to think that you can't move on it either.
@ItIsAllGravy@xanga - Agreed. I honestly don't think half the diagnoses these days are real. Too many kids are popping prescription pills for a disease they don't have.
My best friend is autistic. I love him with every ounce of my heart and think he's one of the best people I've ever known. He hides his autism well and for the most part is a fully functioning regular adult. It only truly comes out when he's in a stressful situation with strangers. But he's a paramedic and kicks ass helping others - he just lacks something that a lot of people with autism, asperger's, and other diseases do (hell, even people without disease) - and that's confidence. It makes dating extremely difficult for him. Honestly, I think if you work hard on your confidence, embrace who you are and what you have, things will look up. People don't care what you have, but rather, how you work with it.
Wow just recently I found out brother has this. He's now 29. We're 10 years apart and I hardly know anything about him.
*wondering if you are my fiance's brother*
You have worked yourself up, more then any other person could.
Have you ever seen a dog with 3 legs, carrying on as if that's how it always was?
EVOLVE.
You have awareness of your situation, and every time you blame something on it, you weaken yourself.
Why don't you go to a cancer ward? Or intensive care unit? Go visit some kids who don't even get 20+ shitty years....
Oh well, they're not me. Fuck them.
Yeah, they are you. We're all one in the same. You've only been taught separation. Taught you're different.
Quit the pity party of how many years.... Everything in life is a stepping stone.
To use the words Can't, or phrases like 'I don't', is to say you are differnet, should be treated different, and or, have no desire to progress. You are the one to give in to it.
I don't know fuck all about aspergers, but I know a few things about obstacles, life takin a shit on a person, and surviving.
EVOLVE.
Believe whatever you want about yourself, tell others whatever you want, but its you at the end of the day. Know who you are.
Unless it a terminal disease, every intelligent person will be able to build from there.
People without social inclinations can often have some of the most high-paying jobs. Your reasoning is apparently being tampered with by your depressive and negative thinking patterns. Social skills are learnable. Read a motherfucking book. Many people are socially inept. They overcome it. Do the same. By the way, Asperger's syndrome is bullshit. the people who are wrognly diagnosed with this simply have a certain personality. google the phrase "INTJ Mastermind" and you'll see what i mean. There's a massive pharmaceutical-medical complex, and it is out for you and your parents' money.
I haven't read this post (yet), but I just wanted to say that my ex's youngest brother has Asperger's, and I think he's a WONDERFUL guy. He's smart and caring. I sometimes wish he was my brother!
whats holding you back is your negative thoughts and lack of self esteem not your aspergers.
people with aspergers and live amazing lives. people with negative thoughts and low self esteem are never happy. its that you need to work on!!
im not normal either. i have learnt to love it though. you can do. dont give up!!
i have been dating someone for about 4 months, and for the past month or so we've gotten into a lot of fights because of how he communicates. hes always been odd about things and communication, just lately it has been worse, I think because of extra stress. i believe he may have aspergers, and if he did, i would be more willing to work through this with him. is there any way to ask about this? because the other option is that he is a super asshole for no reason.
I've never been diagnosed with anything, but when I was a kid, I was always being treated as if there was something "wrong" with me, being taken to therapists and doctors trying to figure out what it was. It was never my parents' intention that I go through life feeling like a freak, but I have only recently started to realize that I'm a person, just like everyone else. I just happen to see the world differently and have the ability to write music. Sometimes I do wish I was more "normal" (whatever that means), but I've also realized that it's ok not to be. But growing up, I always felt like a freak and felt like no one could ever really like me because I was too weird.
No matter what your diagnosis or label is or has been, it doesn't make you any less valuable as a person. People who have been diagnosed with Asperger's still get jobs (and relationships), it just has to be the right one for your skills. If you're awesome at math (for example) but not so great at social interactions, then find a job that requires more working with numbers than with people. That's true for everyone, whether they have Asperger's or not. I'm horrible at Chemistry, for instance. But that just means I'd be a horrible doctor and has nothing to do with how good a musician I'd be.
I had a roommate with Asbergers. She never told us, and we never understood why she was so rude to us. We found out later that she had it, and her actions/inactions made perfect sense. I think it would have been important for her to share that with us- we would have reacted differently to her.
there is a zen buddhist saying....... if you walk around with shit on the tip of your nose then where ever you go all you will smell is shit (despite the lilies, sea sweet air, freshly mown lawns) ........ i like that saying because it is a true-ism. if we walk around with a thought caught in our head then it colors everything we enter into. life holds challenges for everyone, everyone, everyone. i heartfully hope and trust that you find the way to reconcile and see beyond the shit and move on....
You're obviously a great writer. Writing is a form of communication, and I got your message loud and clear! You did a beautiful job of communicating your feelings - to people you don't even know - and that is a huge deal considering you're supposedly "socially inept".
I believe, just from reading this, that you can do ALL of those things (land a good job, get an amazing girlfriend) if you just break down that mental block. It might take more work - no, it WILL take more work, but it's very do-able, from what I just read.
Thanks for the post. I'm a mother of five, and things sure are alot different now, raising my 2 and 3 year old than they were 21 years ago when I raised my older children. I am shocked at all the labeling that goes on. Sometimes it's needed, sometimes it's not.
As soon as a child acts in a way that isn't like the majority, they are very likely to get diagnosed with a label arrived at by a series of questions and in many situations, personal opinions.My 21 year old was somewhat socially withdrawn, and exhibited all sorts of behaviours that these days would be considered reason to march off to the psychiatrist. He is a super awesome, totally brilliant working young man today.The world is a crazy place.Our children are reacting to that. Sometimes there are REAL problems. ADD/Autism Spectrum exists (though Im sure there will be new names for these sometime in the future... even now we are learning about the similarities between adhd/bipolar disorder for example)As the world gets crazier, and we bombard our babies and children with flashing, stimulating noisy toys, 24/7 television news casts showing tumbling towers and murderers escaping police in white SUVs, we are going to have more 'label likely' children. They are a product of this insane world we live in.I think that children who skip through life without any problems, playing all the roles never acting out, etc and who are just SO thrilled to please their parents all the time, are probably the ones who are a little bit off...@randomcommets@xanga - awesome comment :)
Just reading these comments..makes me feel like people don't understand ANYTHING. They think, it's oh a label and you can just rise above that..but NO, people do treat you differently and they MAKE you aware of how different you are. They never do stop doing that..and you'll be forever looked upon because of your disease. I may not be autistic, but I'm a bipolar..and when I have my moods..I can't explain them to people..and get blamed for things I did when I'm extremely manic. It's not my fault and they make me feel guilty because of what I have, and they do treat me differently.
It's not as simple as anyone thinks...think positive thoughts. Hell, if that was easy..we wouldn't feel so down..but the fact of the matter is that we are judged and held accountable for everything we have, every little imperfection, or just who we are by everyone, even loved ones.
And it seems that you understand that kind of mind set you have, understanding, no matter how little a step than may be, means that you on the right path. Just try to break that mindset and do your best and if you do your best, no matter how small, it will pay off and besides if someone mentions anything of your disorder, then say, it's just who I am and I can't change that. Accept that part. I know that kind of pain you've had to do..I'm still dealing with being bipolar..but just say, it's just who I am over to yourself many times.
And feel better okay?
Thank you for being who you are. You know, I've not met one person in my lifetime, (now age 58) who does not carry a disability....in one fashion or another. I have posttraumatic stress disorder, anxiety and depression - all of which plague me. However, the one thing I've come to understand, is diagnoses are just that. They are diagnoses of what I have, BUT NOT WHO I AM! I feel the same about you. Social skills are learned, for all of us. Perhaps one-on-one feels better to you. Many people I've known in my life have difficulties socializing. One thing is certain: we cannot be all things to everybody. The best we can do is be all we can to ourselves. Please don't allow people to dictate what God has created, which is always perfection. It's man's perceptions and biases and prejudices that are the distorted thinking of others. You are perfect and you will be guided as to how you can use all of your qualities. Don't judge yourself!
Hugs to you,
Lisa.
As someone who works in an audiology clinic, I see a lot parents come in with their kids looking for some kind of diagnosis because the kid is not performing well in school or is having social problems. They drag the poor kid around from specialist to specialist unwilling to accept the fact that their kid is just lazy or a jerk or, like in your case, just DIFFERENT. The sad thing is that even if the kid was somewhat normal before the "diagnosis shopping," they won't be normal by the time it's over. It's not uncommon for parents to come to the clinic looking for a diagnosis of central auditory processing disorder (CAPD) without even mentioning trouble hearing ONCE during a background history.
I do believe there are people out there who genuinely have Asperger's. But I think it's a mistake to think that every person who is different is ill or needs a medical diagnosis. And I think that constantly trying to find medical/psychiatric diagnoses (i.e. ADHD, Asperger's, CAPD, etc) to explain kids' behavior is a BIG mistake.
Just like autism, normal falls across a spectrum. Kids will not always be sociable, nice, or academically inclined. This does not mean they are abnormal - it just means they're human. These poor kids who don't fit perfectly into what we envision for them are then stuck spending their rest of their living under the shadow of their diagnosis. How does that help them? How is it fair?
@misterjoker13@xanga - well said
i dont believe in that disease. i think it's made up, just like ADD, ADHD, and other "syndromes". you shouldn't believe you have it. just prove everyone wrong. you can communicate however you want if you set your mind to it.
I don't know a lot, but maybe if you don't let it get to you. Mind over body.
I read about this lady who had autism and she overcame it. And she was able to write a book and have a husband. LIke she didn't let it bother her.
Our society really loves labels, huh? I mean, how many kids out there have ADHD? Try all of them. Any kid that gets put in front of a psychiatrist is going to be labeled with ADHD because they're a bit fidgety. All kids are. That's their thing. I'm so sorry you have been feeling this way. I never feel that I've lived up to all that "potential" I showed my parents and teachers in elementary school. I don't think I ever will. Expectations, both in that optimistic & suppressing sense, are incredibly annoying, and I am sorry you have been subjected to this bullshit phenomenon for so long. I wish I could just tell you to say "fuck it, I don't have it anymore . . . hell, I never had it!" and make you feel better. I know that's not enough. (Again, thank you Society, you asshole.) But, what I can tell you is I don't know many people who have no trouble talking a girl/guy they think is cute without the help of a few drinks (and by a few, I mean enough to forget the night). And, I don't know many people who can talk to a professor after class. (I sure as hell can't-I hide behind e-mails because I always forget in person what I had to say.) And, I don't know many people who can glide through an interview, without mentioning some awful previous job experience or visibly sweating.
I have no idea if that helps at all. I hope it does. It breaks my heart to hear these kinds of things.
Labels truly suck, my friend.
You're better off than a lot of people. My brother has Asperger's/Autism/whatever. He can't even write a complete sentence without an error in it. He's turning 21 this yr.