Autism is a burden. An albatross financially, emotionally and physically. It takes every penny, every ounce of strength, the fiber of one's being to care for someone with autism.
And what happens to the caregiver when others need your help? Autism taps us out. We can give and give but sometimes there is nothing left. It is disheartening. It makes us feel even more inadequate. Autism is unmanageable and wreaks havoc on our lives.
I wanted to give more to the Haiti relief effort. I want to help friends and family in need. But I am limited. I have to care for a child who may always need care. I have to prepare my life as if I will always have to care for her as I do now. She will always be a baby and always have large expenses for care and treatment.
It is the plight of any caregiver. The invisible army of people who are worked to the bone and emotionally spent. When you are a caregiver -- especially to someone with special needs, you have little room to give. Even if you so desperately want to give.
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