Saturday, 27 March 2010

  • "WANT BUBBLES!" Was Music to my Ears

    As a parent of a child on the spectrum you hang on to hope.  Sometimes hope represents one word.  As I hear parents of typical kids brag over the fact that their kids can recite the Gettysburg Address or wax poetic over their mini walking Wikipedias, yesterday, I get over-the-moon excited that Ava blurted out "WANT BUBBLES!"

    She has been saying "bubbles" intermittently - usually when I give her a bath and she wants a bubble bath.  I make her ask for bubbles and she may or may no say it.  But yesterday in therapy she was reaching for the bottle of bubbles, the therapist asked her, "what do you want?" and Ava looked up and said "want bubbles!" 

    It's as if the clouds parted and angels began to sing.  It's like a first step, the first smile, the moment of birth all over again.  My non-verbal child, who lost all language at 15 1/2 months, spoke.  It's our Helen Keller "waa-waa" moment.  It is our moment of hope.

    I hang on Ava's every utterance.  She babbles her own language but cannot force real words out.  "Want bubbles" was music to my ears.  "Want bubbles" opened a very heavy, hard-to-open, silent door.   I immediately fantasized about what she would say next.  I called my husband to tell him.  She was not just repeating, she was answering a question and indicating what she wanted.  We rejoiced and felt as if a large weight had been lifted.  Maybe now, she will emerge from her silence.  Maybe.

    And by the way, she got her bubbles!

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  • allaboutava
    • From: allaboutava
    • Name: allaboutava
    • About Me: I have the honor of being the mother to a beautiful little girl. I did not think motherhood would be a possibility, but thanks to the perseverance of my husband and a few medical professionals, Ava was born. I've tried my best to take care of her, help her learn and be there for her every need. She is a special needs child who was diagnosed with Autism Spectrum Disorder in October, 2009. She has a long road ahead of her -- and I will be there every step of the way.
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