We have seen some suddle changes in Justin. I have to be honest, my standards are high so I promise not to give credit where nothing is happening. Some of the changes I've seen: he is 'aware' of his 16 month old sister. He used to ignore her which was heartbreaking, because when she would see him in the morning she had this huge grin for him and he wouldn't return it, he'd ignore her. Although now we still have to cue him to bid her 'good morning' he for example see's her and will go over to her and smile; the sad part of it is that my daughter is now in a 'biting' phase and has discovered the power of her teeth. So poor Justin willingly gave her his arm the other day and where I thought she was going to hug him the little vampire took a bite of my poor Justin! Justin's reaction was the most heartbreaking, where I'm sure he felt pain, he looked at me with the most 'sad' look as if to say, "why did she do that?"....the more difficult aspect of it is that I cannot 'explain' to Justin that she does not know any better because neither does he....he doesn't understand 100% of what's being said to him either. It's so hard.
Another thing that we've seen is he seems to try to sing more; although annunciation is still not there; he hums out most of it; nevertheless, more musical. Aside from some minor experimentation with sound, that's about all I have to report right now. I just had a neurotransmitter test for him along with a Vit. D level and am waiting for the results for new
instruction. We've just started in the beginning of June with some supplements and in the middle with the B12.
Justin's system returned to being 'stubborn' again; whenever we believe to have found a solution to his G.I. problems; his system resorts back to what it was doing before; the temporary relief seems to shut down and return back to HIS normal, which is not normal at all. So with respect to his G.I. problems, we are back to square A..we will keep trying and update progress
As far as his speech, we've seem some good suddle changes; he is trying to use more 2-3 words as opposed to the beginning or end-sound of one word; again, annunciation still needs work, but we are seeing some suddle changes for the better.
FINALLY! We've now gotten Justin on the GFCF Diet that is talked about so much for Autistic Children and others. I must say, in 5 years this little boy has never had a normal Bowel Movement without the aide of stool softeners, etc., and after one week on the diet Justin is going 2-3 times a day! This is an improvement for him. He would go through such anxiety, discomfort & meltdowns for what we would consider such a natural act; I must say, I'm quite impressed. Now, his system will usually react to a change then seem to have 'shut down'. I hope that doesn't happen. But so far so good thank God. I'll keep posting updates. We are currently making some changes to his Biomedical regimen. I'll post some more video footage soon.
My main aim throughout all we are doing is to fix his GI problems and atleast improve his speech, if by a miracle something more comes, (recovery); I welcome it, but that is the extent of my expectation and aim at this point in time. I continue to read up on the research and parental experiences and will be documenting and sharing anything that we witness during this journey.
We thank you all for your support and prayers and look forward to Justin getting better.