Sunday, 28 February 2010

  • Is it Aspergers or Simply Just Bad Habits?

    I am a 36-year-old female and I am on the cusp of being tested psychometrically for Aspergers Syndrome. My Therapist is fairly certain that this is what we are dealing with. There are many years of behavior to sort through. I do not know who I am most of the time and the parts I can remember of my past, does not feel like my own. My self-esteem has been systematically eroded. I always thought I was stupid, lazy, demotivated, unreliable, flaky, highly-strung, narcissistic and angry, when that is not necessarily true.

     But old habits are hard to break. One needs a system, a direction, some answers or some skills sometimes to break the habits of the past. The “origin of habit”, if you will. But what happens when you truly believe that old habits have been changed due to healthier behavior as a result?

    Am I just dealing with bad habits, or Aspergers? I cannot have done this much hard work over the years to come this far, to be told that nothing has changed. It isn’t logical and the thought is terrifying. Am I doomed to a life of inaction and confusion just because I am too much of an ignorant moron to change it?

    I have always secretly loved my mind; it is the years of ostracism/mental illness/drugs that has taken its toll. Despite my desperate need for a solitary and quiet existence, there are people that I love deeply, and they love me deeply back. And despite my misanthropy, I do concede that there are some wonderful people out there. Just because I have not met them in my travels as such, does not mean they do not exist.

    I cannot explain how I feel. I have never been able to. I know my emotions are bubbling away with the heady anticipation of them coming into the light and providing the listener with some clarity, but I am consistently disappointed, even if the listener claims to understand what I mean. They remain submerged, on the periphery of my understanding, a sunken ship. The energy it takes to explain myself in this manner in an hour therapy session, or providing an explanation when someone asks me how I am feeling, makes me want to have a panic attack, such is the level of frustration and fear at being misunderstood and trying to find the right words. The bottomless feeling of not having a clue of what I am actually made of or the understanding that I should be feeling more when the idea never crossed my mind until someone brings it up

    . I am frightened that if I cannot convey what is happening inside, then people cannot help me and I remain stuck like a prisoner in my own mind. I become angry with myself for my deficits and enraged at the person who put me in that position. Is this inability a learnt thing? Was I as repressed as a child as I have always believed? What is the truth?

    There are some things that feel right to me – my mothers’ inability to process/deliver her own emotion and the occasional distribution of violence and my fathers’ characteristic emphasis on honour, integrity and good manners. I was groomed constantly with the emphasis on science (being my obsession) and my bedroom walls covered, not with pictures of teen idols, but periodic tables, diagrams and super novas and my favorite Tonka truck sitting cleanly in the corner. But I also remember my musical saturation with my father being a musician and my mother introducing me to the likes of Public Enemy, NWA and Bob Dylan at the age of 13. I was allowed to dance around the house and sing Michael Jackson at top note and put on plays for my family or so my father told me. There is the convoluted mix of history and action versus the question of AS. What would the outcome be if it were a mixture of both?

    The alternative?……. is to do nothing.

    But my mind does not rest. I am not restful, content, or happy. I am my own science experiment with my life filled with controls and participants.I am intelligent enough and old enough to know that I am “different”, outside, missing. It is when I watch other people that I want to understand what it is that they feel and why they look so much more “relaxed” than I do. That their interactions are the graceful, but somewhat frightening, dance of human emotion, when I struggle to push out any cohesive sentence about feelings to my satisfaction. I have been lying to myself and to others my whole life. Not because I am a good liar, but because of survival. In saying this, I was pushed by forces beyond my understanding 2 years ago to face myself in an extremely confrontational and agonizing way.

    I spent a period of intense hibernation with self, to morph into a hesitant participant in Spring, to loving myself a bit, and I will continue to do so with little emphasis on diagnosis. However, in order to love myself, I must feel self-worth and for me the worth comes from using this amazing, complicated brain in an exhilarating, productive and rewarding way. I want to achieve something. I want to feel better about myself because I can FINISH, COMPLETE and FOCUS and forgive myself when I can’t. I want to be able to live with fear, but not let it hold me back.

    There is much I cannot say. There is much I want to say but don’t know how and I have little faith that I have even scratched the surface of what I am feeling. I can only get so far cognitively, a learnt skill, before powers much stronger than cognition create a black hole, an invisible field, and a velvety blackness in my mind that I cannot penetrate. It is intensely frustrating when I can explain the principles of photosynthesis with the zeal of a preacher, only to find my mind completely seizes at explaining my humanity.

     

Comments (10)

  • Schristian@xanga

    I can relate to this post in almost every single way. Thank you for sharing this.

  • mikkyh

    Just to let you know, this was written by a friend of mine on my old blog a while ago.

    Thanks.

  • altie

    Amazing. YOU are both a scientist and a writer of excellent prose. Usually the two do not go hand in hand. I hope you find your emotions, your 'feelings' or a diagnosis to explain why those feelings are missing. My granddaughter was diagnosed at the age of 29. It did not change anything but it did validate her life. That's important, having a diagnosis, an understanding of all the "whys? in one's life.

  • Butterfly_Mystique@xanga

    Thanks for sharing this. I can feel your frustration and sadness, and I understand them.

  • keystspf@xanga

    You sound like me. :) The thing that we need to learn most is to relax and just be ok with life for a minute. Expression is what it is... the need for being understood is inherent in all people. Finding people who understand your expression (whether you've got AS or not) will go a LONG way to allowing yourself to be thoroughly ok with being you. The internet has been a fantastic way of getting to know this far flung group of people who struggles to communicate in person, but has a grand ol' time of it in print.  So, as they say, "Join the club." :)

  • Springingtiger

    I have said before, Aspergers is a reason not an excuse. Instead of being disempowered by Aspergers study it and  use the understanding you gain to make conscious choices about your behaviours - some you will want to change and be able to, some you may want to change but can't (accept them) and some you won't want to change (rejoice in them!). You will find you have much more power than you realise. If you have to be on the spectrum Aspergers is in many ways a pretty good place to be.

  • anonymous

    Thank you everyone for your kind, warm and powerful replies. I am the author of this piece, and I am so glad to have had this opportunity to share, and to thank my dear mate, MikkyH, for providing the platform.


    The dx is official now, after 2 years of observation and dissection form a competent and shrewd psychologist. It has changed nothing in terms of how I am. That will take time, but it has certainly lifted the veil. I am still a little hesitant to view the panorama behind the veil, but I am optimistic.
    I will keep writing, when the inspiration comes, and I am looking forward to reading all of your stories. It is through others triumphs, small or large, that lift me on my darkest days.
    My spirit shall prevail......it always has.
    Lovely to talk to you.
    Michah
  • tsukiouji@xanga

    As we Jesus once said "The one who wishes to understand shall understand". You simply DO NOT force people to understand you for it is  REALLY bad taste and it shall not do, just as you do not force people to love you.  The wrong part in this is your self-impossed believe of having to explain/justify yourself/your actions to others; for the ones who understand the mystery need no explaining, for the ones that do not, none is possible. Live your own life, do not rely on others to feel significant in all it's ways. Do not try to prove yourself that you are worthy since it only shows self-doubt and it shall make you LOSE credibility with people. You only need to know that you are worthy, and if people ask you how do you know this, just answer "I just know".  We make our own Heaven or Hell on this Earth. Everything happens for a reason, and you are not "deformed". You are just strangely perfect. Many living beings wouldn't be able to survive in environments that are so harsh they would kill anyone else if they weren't so bizarre. For me "bizarre" is just a special kind of beauty, proof of that God (whatever the concept means to you) works in mysterious ways.  Explanations will come to you, just listen without prejudice.

  • anonymous

    I can relate to your self esteem issues.  I have had big problems with feeling stupid for most of my life.  I often have trouble explaining myself properly and sometimes even end up saying things I don't really believe.  I've also said things that are quite stupid or insensitive at times.  It frustrates me still that the person I am is not the person I feel that I portray.

    I've noticed a big difference in conversations between my husband and myself and conversations with other people.  What tends to happen with us is there are pauses for thinking time and we often don't look at each other when discussing a big topic. In conversations with other people there is pressure to get something out there quickly.  This leads to the stress of having to sort through ideas and get them in a somewhat understandable state quickly.

    I think the conversation problems are due to a difference in communication styles between NT's and people with AS.  NT conversations don't usually leave much room for pauses or thinking time because the context of the information shared is usually social in nature.  Where as AS conversations are usually based on information, which takes thinking time. Merge these two things together and you have an AS person struggling to get enough thinking time to manage a socially based conversation. This is also why NT's look more relaxed in conversations.

  • anonymous

    I definitely know what you mean about feeling lazy and demotivated - I struggle with this quite often, especially when I have a project in mind...

    It sounds like quite a few of the issues you're talking about here relate to Autistic Inertia - a phrase I only discovered a good decade or so after I was diagnosed. Autistic Inertia is the autistic tendency to focus on one task, sensation, or mode of thought at a time - which can be positive (development of special interests and the ability to hyperfocus), but has the unfortunate side effect of making it difficult to change modes of thought or to start new tasks or projects. This inability to commence or change tasks is often referred to as "Executive Dysfunction".

    One trick to get around this is to try ways to ease yourself into a mindset slowly. For example, if you want to write about your emotional state or your experiences, one way might be to start by writing a series of nonsense words to get into writing mode, then write some arbitrary facts about the experience to get into the mindset of writing about the experience (e.g. the room had blue walls, three other people were nearby, etc) - easing into a task in small steps like this can be easier than trying to start a task in one go.

    Another idea (one that I'd love to get off the ground) is to get a group of people together who all want to do different projects, and set a time to work on them together - either in person, or via Skype. That way everyone can borrow motivation off each other.

    I know that recognising and writing about emotions can be difficult even in the best of conditions, but hopefully some of this will help with starting the task.

    Here's an article that goes into a bit more depth than my little suggestions:
    http://www.autistics.org/library/inertia.html

  • Sign in to Comment

  • Give eProps (?)

About the Author

Who recommended?