Monday, 23 November 2009
I know some people get all upset when someone stares at their disabled child and others may even come to your defense when they observe someone doing so, but I never feel violated or threatened by onlookers. It’s perfectly natural that something out of the ordinary would cause someone to do a double take and if the fascination persists, a stare may ensue.
Be warned though that if I see you looking our way I may feel free to start a conversation with you by pointing out that what my son is doing is helping him to cope with an uncomfortable situation because that is most often what would be observed by people when they see us out in public.. It’s not a favorite activity for someone who likes things to be quiet, odor free and predictable. Why, the minute we cross the threshold of our front door the anxiety and over stimulation may set in and by the time you’ve laid eyes on us he may be in full stim mode.
If I’m going to paste awareness ribbons all over my car I may as well get started by taking these opportunities to look beyond the stare and use it as an opening to the door of understanding. So when I become aware of you noticing my son’s "interesting" behavior I don‘t mind if you stare, just be ready to take notes.