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Wednesday, 10 March 2010

  • Self-educate, Inform and work with the system: Teachers are people too

    One of the biggest issues facing our children happens to be that the educators charged with educating them do not know how. Most of them have been taught how to teach children with dyslexia, ADD, NVLD, processing issues, OCD (here)and even dyscalculia. But they do not know how to access the autistic brain. At this point you need to guide and engage the teacher, the principals, and the school district and make it a positive thing for them that they open up to teaching and understanding your child and listening to you about that.

    Have your child teach their classmates

    Get the school to let your child teach their classmates about their autism. One of the nicest things that was done for Highschoolboy, was that in fourth grade he, with the help of a special education teacher, prepared a power point presentation for his class all about aspergers. Of course it was very basic, but sufficient to get the point across about who HSB was and why.  So not only did the children learn about autism, but HSB learned about his own disability. He understood himself much better. Did it make a difference in his world? I think it did. The reason being that the other students understood why he did what he did; that he was not being difficult on purpose and they knew that he was basically a nice kid with issues.  I think this presentation had a hand in why no one picked on him and he was not bullied. Even in middle school the students took it upon themselves to make sure he was treated nicely. Because of that HSB is probably one of the few children with aspergers who, so far, has not been bullied in school. His experience is very different than collegeman’s. Is a class presentation a guarantee? No, but it’s worth a shot.

    More Here...
  • "Less Skills" Does Not Mean "Less Independent"

    Brandon called me last night and said he was exhausted. He had had a B.E.S.T. treatment (alternative treatment, for more information see below), and they can be exhausting, but it was more than that. He began to tell me that he had to get his cable bill straight, and his insurance company had increased his deductable. It wasn’t said in those exact words, but that was the essence of the conversation.He then told me that he called his brother, Matt, as he requested and he gave him his new e-mail address.

    I asked him if I could have his new e-mail address too, and this is what he said, “Mom, I am too tired to give you my e-mail address, it’s just too much.” Multitasking is my middle name, so I wanted to say you must be kidding just tell me the e-mail address, but instead I remained silent. I have found that silence works well, especially when you don’t have anything nice to say. I then realized what it took for him to do all these things he told me about. In the past, he would not have been able to do any of them and now he accomplished several things in one day. I then was able to say why don’t you give me your e-mail address another day. I am so proud of everything you were able to accomplish today, and you did it all by yourself. How fantastic!

    You could tell on the other end of the phone that he was quite pleased with my response, and with himself. Yesterday was a huge break through day for Brandon, being able to handle and complete all these tasks.

    More Here...
  • Social Skills Therapy for those with Autism

    Meeting new people is difficult enough for most people.  You make a mental check list:  shake hands, smile, remember their name, make small talk.    But for teens with autism, it is downright disarming.  That’s why many school districts and psychologists are now offering social skills as a type of autism therapy in their arsenal of autism therapyautism education, and autism information.

    Some social skills therapists are working with kids in break-out sessions.  Offering neuro-typical children the option of being “social skills coaches” while helping their autistic peers.  They meet once or twice a week and role play. This autism therapy is helpful not only for the child/teen with autism (as they see how their peers behave) but is also helpful for neuro-typical children as it teaches them compassion.  Something I have seen first hand. 

    More Here...
  • Normal to the Naked Eye

     After having a few days to mull over Big Brother's IEP meeting, I realize there are some things that stuck with me.  Yes, it was a good meeting overall, but over I've come to realize I hit the same mindset that I encounter year after year.


    "He doesn't come to class prepared."

    "We put the material on the board, but he doesn't write it in his planner"

    "If I let him off too easily how will he learn?"

    And my personal favorite:

    "Why won't he tell us when he needs a break."

    It doesn't seem to matter how much literature they're given, how many meeting we have, how many tests they're shown, the result is eerily familiar.  Heads nod with understanding, I see's are uttered, but -- and this is a big but --in the end.the mindset remains the same.  When push comes to shove, the expectation is that these kids on the spectrum -- who appear so normal to the naked eye -- should be able to do what those around them do.  If not, it is often seen as a matter of willfulness, of manipulation or just being downright lazy.

    How can I say this?  Easy.  Phrases like "he's digging his heels in", "he could do it when he wants to" or "he's just not trying" are dead give-aways.  They reveal the lack of understanding that my child's problem is based in neurology, in wiring -- and not in conscious choice.More Here...

  • Making a Good Mess

    At last I have a moving date for C - in 6 weeks. Which is a huge relief. And this time I feel more prepared as I have some idea how C will react. But I also have different concerns this time as C has regressed in so many areas since his first move and after 11 months is not yet back to where he was. But I know the new home will be more suitable in the long run so hopefully C will settle quicker this time and begin to regain what he has lost.

    Over the years I tried many messy tactile substances in messy play to deter C from smearing. But never found a good enough substitute! He still smears but these days it is thankfully a bit more contained. Trying to keep C’s nails clean though as he won’t let anyone cut them since he moved is very difficult. Any advice gratefully accepted!

    More Here...
  • Homework Meltdown

    Yesterday was another difficult day for homework. I don't know what makes some days easy and some days hard. During one of Jonathan's times in his room to "calm down" from a meltdown, it got quite for a long period of time. I called up from the bottom of the stairs. His bedroom door was closed which is unusual.

    "Jonathan are you starting on your homework?"
    "No. I'm writing a letter."

    He came down to the kitchen about five minutes later and handed me a scrap piece of paper folded up into a cross between a paper airplane and a cootie catcher.

    "Is this to me?'
    "No it is to my teacher."

    I unfolded it and read:   More Here...

Monday, 01 March 2010

  • Don't Neglect Your "Health" While Raising an Autistic Child

     It can be difficult to take care of yourself when raising an autistic child. I spend most of my time and energy on both of my kids. With my son, I am also taking him to appointments several times a week. I am homeschooling him, too.

    For the last couple of years, I have been putting off going to the doctor to have a skin abnormality checked out. I would tell myself that it isn't important. My mother and sister would insist that I needed to get it checked out, and I would dismiss their concerns.

    The bottom line was that I didn't have the money or time to have it checked. Actually, that's not quite true. I didn't want to spend the money or take the time to have it checked. If I did, then I would be doing something for myself, instead of taking care of my kids. I feel guilty whenever I spend money on myself or do something just for me.

    I know. My logic was a little screwed. If I don't take care of myself, who will? If I don't visit the doctor for regular checkups, something that is minor could turn into something serious. Then what? What happens to my kids?More Here...

Sunday, 28 February 2010

  • Riding it out: Bedtime stemming and sleepless nights

    Bedtime Stemming and Emotions The clock flashed 1:11 am....
    My ears had been listening to the nonstop vocal stemming for 4 hours now. My eyes could barely stay open. I had tried every trick I had up my sleeve; brushing, reiki, floor-time... This was just something we had to ride out.
     
    1:24 am... I was tired, I knew we had a busy day ahead of us; Music therapy, occupational therapy, physical therapy, and speech therapy. Mondays are our busy days... coming off of a 3 week bout of the kidney stones my mind and body was tired and weak. So tired! Patience has been drained from my essence... I snapped in a voice that must have seemed ferocious to her, "SAHARA, PLEASE GO TO SLEEP!!" She started to cry. Not a tired cry, but a I'm mad at you hurt my feelings kind of cry!'. She was screaming on top of her lungs this dramatic forced angry cry!! Then she yelled, "I HATE YOU!" (pause) "I HATE YOU!" I was stunned!!
    I laid there in disbelief, not sure if I should cry or laugh. I rewound to the moment my older daughter, Emily, uttered those painful 3 words. I remembered the devastation in my heart and felt a twinge of motherly pain.
    More Here...
  • What if my brother didn't have Autism?

    I always wondered what it is like having a normal brother. Would my perspective on life be different? Although I am classified as being "a drama queen" on my off days, I am actually nice. (deep down, very deep, just kidding). If I had a normal brother how would my life be different?

    I've asked that question to myself so many times. No, these are not questions to sugarcoat that I resent having an autistic brother, I love my brother.
    If it wasn't for my brother, I wouldn't have went to Orchard as a middle school student and if I did not go to Orchard it would not result me wanting to go to Independence, which my parents granted me that last wish for me, when I graduated 8th grade. My brother has been a lot of things for me, at one point, I mistakenly considered him a burden and all I can do is regret those words muttered out of my mouth.

    Without my brother, I would not be compassionate. I would not have the softness in my heart that I do now. When I used to see special ed kids, I would say "I bet their life sucks." Or I would not feel any remorse, nor sympathetic towards the people that spent a lot of their time caring for them. My brother changed that about me, you can say i use to be this "cold hearted drama queen".
    More Here...
  • Are you listening to me?

    Yesterday, we met a friend and her family at Disney. She has children with autism as well. It was pretty evident that we had both prepped our kids for the meet up as both boys went looking for the other one. lol I was kind of discouraged when Logan first met up with Noah as he just started talking like Noah should know him. When Noah didn't respond, Logan really had no clue what to do. Absolutely none.

    Lucky for Logan, supermom aka me , was there to help him work through the intricacies of that situation. It was a real eye opener in that even though we have come so far, there is still a long way to go. One of my wishes for Logan is to have long term friends. Clearly, we need to continue to work on social skills.

    A little while after the conversation fiasco, Logan was waiting in line behind me as I ordered lunch. He was talking to Michael aka Dad just fine. The conversation went back and forth well. I must admit that I only halfhearted listening as they were talking about Halo,a video game. Since I don't play video games , I was not interested. Several minutes later, Michael told me at the table that Logan had tapped him on the shoulder twice while they were talking.

    More Here...

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