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Tuesday, 18 June 2013

  • Our Journey with Epilepsy



    I just opened my box at the post office and inside; there was a flyer from the Epilepsy Foundation. In large bold red letters, it said CURE epilepsy.  I have seen those words on that flyer many times before, but this time it made me angry.  My son, Brandon just turned forty years old and together we have worked extremely hard to help him achieve his dream of independence. More Here...

  • Auditory Processing Woes




    God bless my sweet boy!!! Auditory processing really kicks his butt. (if you're new to the world of Autism, just click here for more info on what it is. Many kiddos with ASD often have issues processing what they hear.) I am seeing it more and more recently. Just this morning as I was giving him his spelling test it was the worst I had ever seen it. More Here...
  • Capturing an Essence: How Autism Parenting is Like Photography



    I have found two perfect thoughts that capture the essence of what I've been feeling lately as I try to communicate what life is like for someone on the spectrum, as well as for those who love and care for them.

    I found them, on all places, on a blog about art and photography from a French female artist. In a way, this is very appropriate, as I have found in France the inclination to look at and celebrate the individual, rather than submit to the herd mentality and do it up better than the Jonses.More Here...
  • What A Good IEP Looks Like



    This is what a good day at school looks like. I've been running on all cylinders, changing diapers, and trying to help my boy feel some relief for the past 10 days.  It's been a whirlwind and I think - I hope - we're turning a corner on Jack's antibiotic-related GI issues.

    Of course, the day before we headed down this road, we had that all important acronym that strikes fear into the hearts of special needs parents everywhere.

    I'm speaking - of course - of Jack's annual IEP.
    More Here...

Monday, 17 June 2013

Sunday, 16 June 2013

  • Guess what?





     
    One of the things that I truly appreciate about Bianca is the level of our communication. I understand her like no other person. I know what she means when she furrows a brow just so, squeals a certain way or pulls my hand in a certain direction… and of course when she just plain asks for stuff. 
    More Here...
  • Achieved IEP Goal


     

    We had our IEP meeting with the TEAM.  And we are incredibly encouraged by the fact that we kept seeing 'achieved' by all of his IEP goals. More Here...

  • Katie Couric Talks Autism


     

    Katie Couric is an award-winning journalist and TV personality, well-known cancer advocate, and 'New York Times' best-selling author of 'The Best Advice I Ever Got: Lessons From Extraordinary Lives.'

    Couric hosts and executive produces her own syndicated daytime talk show, Katie, which premiered in national syndication last September. She also serves as a special correspondent for ABC News, contributing to 'ABC World News,' 'Nightline,' '20/20,' 'Good Morning America,' 'This Week,' and primetime news specials. 

    ---

    My godson, Jay Burstein, was diagnosed with ASD ten years ago. Little Jay (he was named after my late husband, Jay Monahan) had no spontaneous language until he was almost five years old. He has worked incredibly hard --with many gifted therapists and teachers, and today Jay attends a special education program in a public school, where he spends part of each day with his mainstream peers in mainstream classes. I’m so happy to say, he rarely stops talking. For many reasons, Jay is very fortunate. I am incredibly proud of him and all that he has accomplished. I’m also so grateful for all of the dedicated professionals who have helped Jay —teachers and therapists can make such a difference for children with autism. More Here...

  • Sometimes Safeguards Fail



    This is my front door. There are 3 locks. 

    To blog when you are frustrated, when you feel like you have been pushed beyond what you can take is never a good idea and yet, here we are.

    Today has been a craptastic day. Anything that could break has broken. anything that could be made a mess of, has been made a mess of. any fight that could have been fought, has been fought. any request that could be denied, has been denied. I hate this day. I have had enough. and then there's more. I'm not mad at the comment, I'm mad at the situation. I'm mad because there is nothing to be mad at and I need to be mad at something. I'm so freaking tired, so stressed out. I am so thankful my brother showed up just at the time I really needed a break. but I'm still frustrated. More Here...

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